Having a family member with special needs can sometimes be overwhelming.
Like trying to connect the dots when you can’t even find the next number.
High Hopes Development Center is pleased to introduce “Connecting-the-Dots”, an endeavor to support families caring for those with special needs. The goal is to provide encouragement and put available resources at your fingertips, and will be led by parent volunteer, Alison Kirk.
Alison, mother of two distinct daughters, both with special needs, has volunteered to lead this effort as Resource Administrator, serving as a point-of-contact for family members and by sharing the knowledge and compassion she has gained through her own personal journey.
Please take a moment to find out more about Alison and what she can do to help you and your family in your journey of “Connecting-the-Dots” of caring for someone with special needs.
“When describing children with special needs, it is all too easy to fall into a listing of everything that doesn’t work…everything they can’t do. But as those of us with a front row seat to these little lives know, there’s much more to the story. It takes a bit of time to get to know children like my daughters, Caroline and Kate. They were sisters with a common disease that limited many of their choices, but seemed to intensify what was still available to them. Simple sensations—a summer breeze, a bite of cupcake, sparkly lights—gave them pure joy. Caroline liked to look at books, Kate liked to head butt people! They were individuals whose lives required more than the usual amount of caretaking and advocacy. Parents of children with special needs become skilled in areas we never dreamed we’d tackle. We have our own language. IEPs. Chewy Ps. ABA. Blue Day. Waivers. Gait trainers. We often have more knowledge at our fingertips than many of the health care professionals we consult. We are members of the most Special Secret Service ever—escorting and guarding our small dignitaries. It is an all-consuming world. Most days, we do the best we can. Some days, we fall short of that. But we love, and we are present, and we keep putting one foot in front of the other for these children of ours.
I welcome you to join us as we strive to help families right where they are…so let us know what your current needs are that we may best seek to meet them. I’m sad to report that I’m fresh out of winning lottery tickets, and I don’t handle legal or insurance issues. I understand how hard it is to find time to explore community resources, so I’m available to help you look up services and products and find and print out articles about diagnoses and treatments. I’m also available for brainstorming sessions. My favorite thing to do is listen to stories about your children. I will post items of interest on the blog page, and I welcome your input as to what you’d like to see here. I view one of my roles as facilitating conversations among parents who don’t have the opportunity to sit in a room together. Consider this your room. Put your feet up.”