Congenital Heart Defect Awareness


The month of February is Congenital Heart Defect Awareness. We have a guest blog post from two High Hopes’ families, the Boyers and Daniels, sharing their family’s journey with a Congenital Heart Defect diagnosis.

Congenital Heart Defects (CHD’s) are the most common type of birth defects. CHD’s effect about 40,000 births per year in the United States. About 25% of babies with a CHD have a critical CHD. Critical CHD’s generally require surgery or other less invasive procedures in their first year of life. CHD’s are the leading cause of birth defect related infant death. About 20-30% of people with a CHD have other physical problems or developmental or cognitive disorders. The occurrence and severity of a developmental disability or delay increases with how complex the heart defect is. So a therapy center like High Hopes become a heart family’s second home.

With 40,000 births per year, or 1 in 100 births being affected, one wouldn’t imagine that 2 of their 5 children could possibly be affected. But that’s where the Daniels found themselves.

From parent Ashley Daniel: